Dawn M Ireland
CDH International, USA
Biography
Dawn M Ireland is the Founder of CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. She stepped away as President of CHERUBS and into the role of President of CDH International to further the research projects that the organization is involved in. Currently, she oversees CDH International which now runs the world’s largest natural history database of CDH which has 3 boards, employees, many volunteers, assists over 6300 patient families in 70 countries, presents research abstracts and works with both the NIH and the EU. She is also a Founding Member of the Rare Advocacy Movement and senior level patient advocate, mentors several other non-profit organizations, Founding Member of the Alliance of Congenital Diaphragmatic Hernia Organizations, written/edited 4 books and spends her time between the United States and Europe to continue the organization’s growth and outreach.
Abstract
Abstract : 20 year demographics and preliminary survey results from CDH International